Pharma Industry leaders, Health Care and Patient Centricity. What Is The Formula For Engagement?

Patient Centricity on social media pearls

Pharmaceutical Industry Leaders, Health care and Patient Centricity

Can industry leaders  go beyond their product, to provide value as a patient-centered organization? Can they add value to the evolving health care system and patient movement ? if the answer is yes to the above questions, what would that look like?

Why am I asking these questions?

I would like to share three stories to provide a little more context:

1. Pharma and Patient centered conferences

I am constantly searching for patient-centered conferences and seminars. Especially those that attempt to bring leaders together to facilitate conversations across the health care value chain in a meaningful way. So, I was thrilled when I stumbled-upon one such conference where patient centricity was its sole focus.  Given that the health and the well being of patients are at the core of  any health care effort, such a conference seemed promising. I was very excited. However after a little research, I realized that the price point and target audience were not aligned to patient communities. Registration started at $2000; a price point that would be out of reach for most patient communities. The audience  was executive-level, pharmaceutical leaders and health care solution providers. Not your average patient. Consequently, my excitement was short lived.  I had encountered another conference, where  the subject matter and objectives were linked to patient centricity however, what was visibly absent, were patient communities. I am always perplexed by seminars, conferences and/or meetings  that have the patient well being as the focus of their meetings but clearly have not target the patient as their target audience.

2. Pharma and Online Engagement

Following on from my finding in  story [1]; the good news about the conference I stumbled-upon was that I did see a number of online community representatives as part of the attendee list. To-date, industry leaders have been very reluctant to engage in the social space and with online communities.  The primary reasons are related to regulations, namely: 1) direct to consumer advertising and 2) adverse event reporting. In a recent study by Across Health, it was shown that  although regulatory issues was on the top of list for not engaging, questions around strategy and  ROI also made the top 3 reasons. There is also the question around reputation management. This is very intriguing, as one could interpret this as an indicator of organizations not quite knowing how to proceed. Next story….

3. Rise Of The Patient Guest interviews [Andrew Spong and Kevin Leonard]

As part of my talk radio series, Rise Of The Patient, I had wonderful conversations with Andrew Spong [Co-Founder of HCSMEU]  and Kevin Leonard [Biostatistician and Patient, Crohn’s Disease]  on topics that included sourcing quality information, patient access to information and patient engagement.  Learnings from these interviews highlighted the need for industry leaders to take accountability of their information on the internet and the need to invite patients to the table when patient-related conversations are occurring. I was so surprised when Kevin shared that he was often invited to patient centered conversations as a biostatistician but not as a patient living with a chronic disease. What missed opportunities. right?

 

So I end where I started. If there is a need to educate and share perspectives from the various viewpoints in health care, should there not be a forum where such conversations could take place? One where practitioners, industry leaders and patients could partake? Health care social media chats are excellent but what about these other conferences ?

Can industry leaders  go beyond their product, to provide value as a patient-centered organization? Can they add value to the evolving health care system and patient movement ?

I think this  would be a great question for the Health Care Social Media, Canada [ #HCSMCA ] community.  Join this Twitter community in a Twitterchat on Wednesday April 3 at 1pmEST to have that conversation.

 

Cheers!

Shirley

Image: Old Shoe Woman on Flickr 

 

 

 

 

 

 

 

 

 

5 Responses to “Pharma Industry leaders, Health Care and Patient Centricity. What Is The Formula For Engagement?”

  1. michellegilstrap Reply April 2, 2013 at 5:03 pm

    Great post, I find when providers listen they can change how they perform with patients, especially with chronic pain patients. I remember several years ago, my sister was treating a Reflex Sympathy Nerve Dystrophy patient, and asked me about using hot water. I have RSD in my legs and said hot water is fine, but don’t turn on the jets of the whirlpool, that was too much. We were all learning as we treated the pain.

    • shirley williams Reply April 2, 2013 at 7:35 pm

      Thanks so much Michelle!
      There is so much we can learn from each other.I think we are slowly opening the doors so that we can share but there is still a long way to go.

      Thanks for visiting and sharing your experience.

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