Rise Of The Patient ( #ROTPt) Guest Bios
Founder of STweM.
Co-Founder Health Care Social Media Europe (#hcsmeu).
Rise of The Patient guest, Andrew Spong, PhD is one of the most trusted voices in the global health conversation and was recently ranked by peers as the #1 global influencer of pharma on the social web.
Co-founder of the leading European healthcare community, Health Care Social Media Europe (#hcsmeu; @hcsmeu) and premier healthcare podcast Digitally Sick (@digitally_sick), he has an international reputation as a community builder,health conversationalist, creator and curator to pharma, healthcare professional and patient communities across the social web. Andrew is Founder of boutique social business development and health communications consultancy STweM.
Founder, Health Care Social Media Canada (#hcsmca).
Engagement and Community Manager, Canadian Virtual Hospice.
Rise of the Patient guest, Colleen Young is a community manager and communication specialist who builds online health communities that thrive. She is the Founder of Health Care Social Media Canada (#hcsmca) – a community of practice exceeding 5000 members who share and learn via online social tools, making health care more open and connected. As the Engagement and Community Manager for Canadian Virtual Hospice, Colleen has built a sustainable community for patients and caregivers seeking online peer support at the end of life and through bereavement. She believes that engaged patients, caregivers and providers can leverage technology and the knowledge of the community collective to be the driving force that will build confidence in peer-to-peer health care and participatory medicine.
David Lewis is a family doctor in United Kingdom since 1999. After secondary schooling at Scotch College, Melbourne he completed medical training at Monash University and Alfred Hospital in Melbourne. Postgraduate training in United Kingdom in general surgery then family medicine followed.
In 1990, David was diagnosed with advanced Hodgkins Lymphoma. This was the same year his father died from lung cancer, and he married Danielle. Danielle was pregnant with their first child at the time of diagnosis. Anxious to have further children, David delayed essential treatment for the lymphoma to store sperm. This action has been vindicated because twins were born in 1994 with help of IVF; the children are among first 5000 IVF babies in UK. The twins have blessed the family by gaining entry to Oxford (Philosophy and French) and Cambridge (Mathematics) respectively.
In 2007, David suffered a heart attack requiring emergency intervention, followed by quadruple bypass surgery. The heart surgery was successful, but a complication developed requiring further surgery in January 2008. Sadly, this operation was complicated by respiratory arrest and subsequent five weeks on a ventilator.
Nearly five years after the enforced long absence from work, David works full time in National Health Service General Practice with three Partners. The practice also serves as a site for the University College London Medical School “Medicine in Community” program.
The practice is in a suburban area and looks after over 6,600 people from cradle to grave. In the last couple of years David has developed an interest in promoting the use of information technology for professional development and peer support.
[Sadly I received the news that David passed August 2013].
Caregiver, Business Owner and Director Of Operations,
The Language Shop
Rise of the Patient guest, Deborah Lockhart is the director of operations of The Language Shop, a full service language solutions provider offering translation, interpreting, editing, proofreading, transcription, desktop publishing and voiceover recording and dubbing in all languages and all areas of specialization including legal, financial, entertainment, film and media, online games, medical, website localization and more. Since childhood, she excelled in languages with English as her native language. She works to preserve the standard in all languages and dialects and the respective cultures with which they are associated. Since graduating in 1985 from the University of the West Indies (Mona Campus) with an Honors Degree in History with (French and Spanish) Language and Literature, she launched her career in translation and interpreting in Antigua and Barbuda where she provided translation and interpreting services to government offices such as the Elections Office, the Office of the Prime Minister, the Ministry of Legal Affairs, the Ministry of Public Works, the High Court and Magistrates Court, et al. She translated and interpreted for the Venezuelan and US Embassies and for various law firms, medical practitioners, media and advertising and commercial entities. After nine years, she moved to New York, USA where she obtained Certificates in Translation and in Court Interpreting at NYU SCPS. She worked as a freelance translator while serving for about a decade as a legal secretary in New York City law firms. In 2006, she established The Language Shop where she directs project managers and their teams in every time zone to provide top quality language support to the Company’s diverse, worldwide clientele on a full time basis.
Deborah speaks English, Jamaican Patois and various other Caribbean dialects, Spanish, French and basic Arabic. Her interests are pets, gardening, language and culture, film, food and entertaining. For more information, visit The Language Shop.
For over six years, Deborah has also been a full-time caregiver to her 87-year-old mother. This entails arranging for medical insurance and prescription drug coverage, selecting healthcare providers and specialists, obtaining long-term care and relevant services such as home health care, transportation to medical appointments, durable goods, personal response systems and ambulatory aids. Her heart’s desire is to make it possible for other seniors to receive the same support that she has given to her mother.
Rise of the Patient guest, Dave deBronkart, widely known as “e-Patient,” is a cancer patient and blogger who has become a noted activist for healthcare transformation through participatory medicine and personal health data rights. The term “e-Patient” was coined by “Doc Tom” Ferguson MD and is the subject of his seminal paper, “e-Patients: How They Can Help Us Heal Healthcare,” funded by Robert Wood Johnson’s Pioneer Portfolio.
In 2012 the National Library of Medicine’s History of Medicine Division announced that it’s capturing Dave’s blog into its archive
A successful speaker in high tech before his illness, Dave is today the leading spokesman for patient engagement, attending over 180 conferences and policy meetings internationally in the past two years. He is a founder, board member and past co-chair of the Society for Participatory Medicine, formed by Ferguson’s followers after his death, and was one of the patient participants in the OpenNotes project.
In 2009 Dave’s blogging about health IT put him on the front page of the Boston Globe and thrust him into DC policy discussions about patient access to medical records under Meaningful Use. He’s appeared in Time, Wired, U.S. News, and the HealthLeaders cover story “Patient of the Future.” In 2009 HealthLeaders named him and his doctor to their annual list of “20 People Who Make Healthcare Better” for their role as founding co-chairs of the Society for Participatory Medicine, bringing official recognition to the importance of the e‑patient movement
In 2011 his TEDx talk On.TED.com/Dave went viral globally, rising into the top half of the most-viewed TED talks of all time; volunteers have added subtitles in 26 languages. Its tagline is his appeal: “Let Patients Help.”
Jackie Hickey, RN CCP.
With more than 25 years of nursing Jackie has focused her career on home and community care. She realized there was a need for innovative health care services that are accessible, convenient and sustainable. As Community Health Advisor for Bayshore Home Health, Jackie’s goal is to educate and support family caregivers in caring for their loved ones, and serve as a trusted health advisor.
Rise of The Patient guest, Jackie joined Bayshore Home Health with a professional and personal goal to make a difference in the future health of aging Canadians. As the author of the Caring@Home blog, managing editor of the Eye on Health newsletter, host of the Here’s to Your Health internet radio show and weekly guest on AM740, Jackie brings health care home.
Human Resources & Management Executive
Are business results and performance metrics your passion? As a highly talented Human Resources executive with a proven track record and strong business background, Jennifer is very passionate about driving performance. She enables business growth by integrating business strategies and Human Resources to ensure alignment of people, processes and systems.
Rise Of The Patient guest, Jennifer Kraemer champions the evolution of cultures by managing change in global organizations experiencing significant growth or critical changes. With a customer focus, she ensures alignment of business strategy and company objectives that drive better metrics and/or results.
As a trusted business partner and coach, she has strong capabilities in steering teams to establish direction and achieve increased performance. With a talent for developing strong relationships and over 25 years of experience across a wide variety of industries including Consumer Packaged Goods, Technology and Healthcare she is able to leverage a breadth of knowledge and capacity related to: reorganizations, divestitures, business start-ups, system changes, mergers and acquisitions, and businesses in accelerated growth mode.
Former television journalist, Kathy identifies and helps fill gaps in patient-centered health education. Her award-winning hospital-based tv networks broadcast across North America. Taking her insights to the digital world, Kathy is a respected social media participant and contributor and invited tweeter and blogger at conferences, round-tables and think tanks on patient centered care. Kathy’s newest initiative guides through medical options at life’s end: BestEndings.com
The Late Kevin J. Leonard, MBA, PhD, CMA
Associate Professor, Institute of Health Policy, Management & Evaluation (IHPME), University of Toronto
Founder/Executive Director, Patient Destiny (www.patientdestiny.com)
Executive Director of the IMPROVE IT Institute – Indices Measuring Performance Relating Outcomes, Value and Expenditure from Information Technology
Research Scientist with the Centre for Global eHealth Innovation, University Health Network.
Rise Of The Patient guest, Kevin Leonard received his PhD from the Joint Doctoral Program in Montreal where he specialized in Statistics and Information Systems Theory for Business. He has two primary areas of research: (i) the implementation of electronic health records (EHRs) along with researching issues pertaining to the development and implementation of patient-focused information technology (Personal Health Records or PHRs); (ii) the creation and implementation of metrics for performance measurement of the Information Technology (IT) investment within healthcare.
Kevin has Crohn’s disease and has had frequent and extensive interactions with the healthcare system. He is a strong believer in patient empowerment and the critical role patients play in managing their care in consultation and collaboration with their health providers. Through Patient Destiny, Kevin is working to promote the recognition of “patients as partners in their healthcare”.
Rise of The Patient guest, Dr. Kevin Pho is a board-certified internal medicine physician and founder of KevinMD.com, which Forbes called a “must-read health blog.” Klout named him the web’s top social media influencer in health care and medicine, and CNN named @KevinMD one of its five recommended Twitter health feeds.
He is also co-author of the book, “Establishing, Managing, and Protecting Your Online Reputation: A Social Media Guide for Physicians and Medical Practices.”
Transforming his social media presence into a mainstream media voice, he has been interviewed on the CBS Evening News with Katie Couric, and his commentary regularly appears in USA Today, where he is a member of their editorial Board of Contributors, as well as CNN and the New York Times. His opinion pieces highlight the challenges real-world doctors face, ranging from the primary care shortage to the epidemic of physician burnout. His dual perspectives as a practicing physician and a health care social media leader contribute to his unique social media journey. He shares his story in keynotes nationwide, with audiences that include the PRSA Health Academy, Healthcare Internet Conference, Massachusetts Medical Society, American Academy of Otolaryngology, Texas Medical Association, the National Council for Community Behavioral Healthcare, PAINWeek, and New England Journal of Medicine. Dr. Pho practices primary care in Nashua, NH. He received his medical degree and completed residency at Boston University School of Medicine, and is a member of the New Hampshire Union Leader’s 2010 class of New Hampshire’s 40 Under Forty.
Marie Ennis-O’Connor is a PR consultant with a passionate interest in healthcare social media. She is a board member and social media manager for Europa Donna Ireland – The Irish Breast Cancer Campaign, an advocacy group that is one of 46 EUROPA DONNA member countries across Europe. Marie is a regular contributor to Health Works Collective, partner of Doctors 2.0 & You. She is a featured blogger on Berci Mesko’s Webicina, also a partner of Doctors 2.0 & You, and has been awarded a top blogger accolade by Empowered Doctor.com and most inspiring writer by WegoHealth. Most recently she won the best health and wellness award in the Irish Blog Awards for her blog Journeying Beyond Breast Cancer. Marie is co-founder of #BCCEU, Europe’s first breast cancer social media chat, and a committee member of Health 2.0 Dublin.
Artist, Author and Speaker.
Rise Of The Patient guest, Regina Holliday is an artist, speaker and author in Washington DC. She writes about the benefits of HIT and timely data access for patients and families. She painted a series of murals depicting the need for clarity and transparency in medical records. This advocacy mission was inspired by her late husband Frederick Allen Holliday II and his struggle to get appropriate care during 11 weeks of continuous hospitalization at 5 facilities. Regina paints and speaks at medical conferences throughout the world. Her work is visual reminder of the patient in the center of any policy debate and technical application. She also began an advocacy movement called “The Walking Gallery.” The Gallery consists of medical providers and advocates who wear patient story paintings on the backs of business suits. Her artwork has been in peer-reviewed journals such as the BMJ and APA journals. She recently wrote a book “The Walking Wall: 73 Cents to the Walking Gallery.”
Rise Of The Patient guest, Rob Fraser is a registered nurse and graduate of the Masters of Nursing program from the University of Toronto. In his undergraduate at Ryerson University he fused his interested in professional involvement with his interest in technology by founding Nursing Ideas, a website to connect nursing students with leaders, innovators, and researchers in health care. His desire to contribute to creative solutions to improve healthcare lead to his selection as an inaugural Innovation Fellow for the Health Strategy Innovation Cell, where he worked, as the only nurse, with others from medical, journalism, engineering and policy backgrounds on projects for the Ontario Ministry of Health and Long Term Care. Last year he was privileged to be invited to join the Canadian Nurses’ Association’s NationalExpert Commission on the future of healthcare in Canada. In addition to working as a digital tools strategist and educator through his own company, he worked at York University running their nursing simulation lab, and currently sits on the Board of Directors for the VON Canada.
Sally Okun, RN, MMHS
Head of Health Data Integrity and Patient Safety
Patients Like Me
Rise Of The Patient guest, Sally Okun is a member of the Research and Development team at PatientLikeMe, Inc. As the Head of Health Data Integrity and Patient Safety she is responsible for the site’s medical ontology and the integrity of patient reported health data. In addition, she developed and oversees the PatientsLikeMe Drug Safety and Pharmacovigilance Platform.
Prior to joining PatientsLikeMe Okun practiced as a palliative care clinical specialist. In addition to working with and coaching patients and families facing life-changing illnesses she was an independent consultant supporting multi-year clinical, research, and education projects focused on palliative and end of life care for numerous clients including Brown University, Harvard Medical School, MA Department of Mental Health and the Robert Wood Johnson Foundation.
Sally participates on the Institute of Medicine’s Roundtable on Value and Science Driven Healthcare as a member of the Clinical Effectiveness Research Innovation Collaborative, the Evidence Communication Innovation Collaborative, and the Best Practices Innovation Collaborative. She is a contributing author to the Institute’s report on Principles and Values for Team-based Healthcare. Ms. Okun serves on the Program Advisory Board of the Schwartz Center for Compassionate Care in Boston and has been a facilitator for Schwartz Center Rounds® at numerous locations in New England.
Sally received her nursing diploma from the Hospital of St. Raphael School of Nursing; Baccalaureate degree in Nursing from Southern Connecticut State University; and Master’s degree from The Heller School for Social Policy & Management at Brandeis University. She completed study of Palliative Care and Ethics at Memorial Sloan-Kettering Cancer Center and was a fellow at the National Library of Medicine Program in Biomedical Informatics.
Patients Association Of Canada
Rise of The Patient guest, Sholom Glouberman is President of the Patients’ Association of Canada. He has been Philosopher in Residence at the Kunin Lunenfeld Applied Research Unit of the Baycrest Centre for Geriatric Care and Adjunct Assistant Professor at the University of Toronto for almost 20 years. His first prolonged experience in the health field was caring for his dying father. He later managed planning at the Royal Victoria Hospital in Montreal. Sholom added to his knowledge as a Fellow at the King’s Fund in London, England and as director of Health Policy for the Canadian Policy Research Networks in Ottawa.
Sholom has advised senior management, policy makers, and clinicians in the Canadian and British health systems. In Britain he worked across the system from Strategic Regional Health Authorities to individualprimary care practices including such major institutions as the Audit Commission and the Oxford Radcliffe NHS Trust. In Canada, for example, he did research for the Romanow Commission, and provided support for the McGill University Health Centre. He also designed and directed innovative management programs at the King’s Fund in England and at McGill University in Montreal.
In 2005, Sholom underwent a major surgical procedure and became a patient. This experience and his subsequent book My Operation – a graphic example of the disparity between the patient experience and institutional concerns – led him to found The Patients’ Association of Canada in 2007, which became a patient led and patient governed incorporated charity in 2010. The goal of the association is to make your experience count.
For more than 25 years, Sholom has applied philosophical methods and conceptual analysis to organizations and systems. He has focused on the area of health as the single most challenging and little-charted frontier. His research, consulting, and more than 500 speaking engagements have taken him worldwide.
Sholom has a BA from McGill and a Ph.D. in Philosophy from Cornell University. He is the recipient of numerous academic awards and honours in the humanities and health. He is a member of the American Philosophical Association and the New York Academy of Medicine amongst others. He sits on patient advisory councils for Cancer Care Ontario, Infoway, and The Ontario Multicultural Health Research Network to name a few.
Chief Executive Officer/Board Member
Rise Of The Patient guest, Skip Schwartz joined Healthcare 365 as a co-founder and starting President/Chief Executive Officer at the concept stage. He is also a Board member and an investor.
His role as CEO has been to oversee the planning and launch stages and execute on the Board- approved go-to-market strategy and startup the initial 4-6 clinics cluster planned for the Greater Toronto Area.
Skip’s background spans 2 successful stints as an architect/planner in designing major healthcare facilities across Canada and around the world. In his latter stint as an architect, he was in charge of the hospital/medical sector practice in Canada for HOK – one of the largest architecture firms in the world.
As well, he was the startup CEO for a pioneering Canadian-based health services venture – Interhealth Canada. Its mission was to export Canadian healthcare expertise around the world. Its shareholders included various universities, hospitals, governments and private corporations. Skip successfully managed the launch of Interhealth and built this unique organization to over $200 Million in annual revenues. He managed a staff of up to 1,800 in various project locales globally. The organization developed, built and operated major hospitals and clinics in the Middle East, Europe, and Asia, including the largest hospital in the U.A.E ($1Billion capital cost).
Skip has also been, for over 25 years, the strategic planner for one of the largest health care groups in Bangkok, Thailand. This organization, called the Kluaynamthai Group, owns and operates two hospitals, clinics, a nurse aid school, Thailand’s largest geriatric business and a variety of other health care operations, mostly dealing with Bangkok’s poor. Each year, Kluaynamthai treats hundreds of thousands of patients in Bangkok, using some of the most impressive primary, secondary and tertiary care systems in the world.
Through his exposure as an architect and based on his work in Bangkok and at Interhealth, Skip has become an expert in adoption of medical best practices from other global jurisdictions and brings that expertise to Healthcare 365.
Skip is an Honours graduate in Architecture from the University of Toronto and has an undergraduate diploma in science from Concordia University in Montreal.
Director of Community Mobilization.
South Metro Health Alliance, US.
Partnering for accessible healthcare
With a degree in Marketing, Val Purser has over 20 years of experience in not- for- profit, for- profit and government program management. Before joining the South Metro Health Alliance in October of 2011, Ms. Purser served as Volunteer Coordinator for Arapahoe County Government for five years.
Professor and Award Winning Author
Dr. Vicki R. Whiting, professor and award winning author, brings over twenty-five years of business and leadership experience to classrooms and executives throughout the United States. As a doctoral student at the University of Southern California, Vicki was honored as a Sample Fellow. Vicki has focused her teaching, research, and consulting experience in the area of organizational leadership, most specifically on personal and organizational leadership development through mentor relationships, leveraging strengths, and developing effective organizational interactions. Publications in numerous academic journals compliment her recent award winning health care advocacy book, “In Pain We Trust.” Vicki has presented her ideas on collaboration, coordination and commitment through listening and advocacy to organizations including the Intermountain Healthcare Board of Trustees, the American Hospital Association, and at the Utah Nurses Association. Prior to her academic career, Vicki was Director of Technical Services for Digital Systems in Seattle, Washington.
Zakir Hussain – BA, MBA Marketing
Founder, Chairman, President and CEO
Rise Of The Patient guest, Zakir Hussain is the Founder, Chairman, President and CEO of Velo Mobile Health. He is also the President and CEO of VeloSolutions, a telecommunications wholesaler based in Toronto and the founder of Pharmavida S.A., a pharmaceutical distributor incorporated and based in Guatemala. Mr. Hussain has served as founder and CEO of JustSolar Corporation, Director of Marketing at CDI Education Corporation and Analyst at Venture Development Corporation. In addition to his impressive credentials, Mr. Hussain is fluent in English, Italian and Bengali and he possesses a working knowledge of Hindi, Urdu, Spanish and French. You can see more details about my profile in Linkedin.
Founder, Patient Commando Productions.
Rise Of The Patient guest, Zal Press knows chronic illness, having lived for over 30 years with Crohn’s Disease. He understands what it’s like to endure chronic illness in a healthcare system that is not always ideal. Zal founded Patient Commando Productions, to be the leading source of authentic patient stories, and to create Patient experience programming that enriches our understanding of the lived illness experience. From skilled public speakers, to award winning live stage events and storytelling clinics, Patient Commando’s website www.patientcommando.com and programs empower collaboration between patients, caregivers and health care professionals in the delivery of care.
Thank You to all my guests who have volunteered to be on my show
As special Thank You also goes to my Patient and Care-giver guests who are not listed on this page but have signed up to share their story.